John + Carmen | Hills District Family Photographer
I was contacted by Anita earlier this year about doing a film for her father and even though my schedule was full, I immediately said yes. You see, her father John had been diagnosed with Progressive Supranuclear Palsy, also known as PSP and they weren’t sure how much time he had before his quality of life would deteriorate past the point of even being able to do the session.
PSP is a rare neurodegenerative disorder that affects your body movements, eye vision, thinking, memory, speech and swallowing problems and unfortunately there is no cure for PSP. You can learn more about PSP HERE and if you’d like to help support those living with PSP you can donate here.
May is PSP awareness month, and the campaign hashtag to learn more and continue the conversation is #Unmute.
Sadly, not long after John was diagnosed with PSP, Anita’s mother Carmen was diagnosed with Bowel Cancer. As a result, she has had to have surgery and thankfully she is now on the road to recovery.
Initially we talked about just getting the whole family together for an afternoon to film John and Carmen with the grandkids. But knowing how much it’s meant to me to have audio of my own grandparent’s voices, I decided to record an informal interview with John and Carmen separately, before the session with the rest of the family. This way I could ask them questions and get them to tell some stories about their life.
When I arrived at Anita’s house, everyone was just hanging out doing their thing. Then pretty soon a backyard soccer game started happening.